Oct
06

Adios, Moving On and Integration.

by Tony | Comments Off

All good things must come to an end, or do they? All things that are good, continue, change and improve. So it is with this blog,  i.Mephisto: i.Muse & i.Amuse!

I am planning to discontinue this blog and several, in favour of  one blog, Radio666fm.com: Pictures, Songs, & Stories From The Great Beyond.

I won’t be changing my style, heaven forbid. I just want to integrate all my interests into one blog, and write as Tony under the guide of various characters, of which Mephisto reigns supreme.

In time, I will be migrating the posts in this blog over to Radio666fm.com: Pictures, Songs, & Stories From The Great Beyond, in the interests of continuity. But for now, I will be leaving this blog up.

However, I will still be maintaining the blogs Visual Instincts, Professional Deaf Australians, and Gone Fishing, and a slew of others.

See you over at Radio666fm.com

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Aug
20

Coming so soon after some great Australian philosophers  farted romantically about the cockleer implant, a former opposition leader for the Australian Liberal Party [Federal] has decided to hold a symposium, about deafness. The focus being, guess what.

Yes, this symposium is very complimentary of his great intellectual prowess, and liberal thinking, that politicians are renowned for.  The great intellectual tradition of farting, for which he hopes to mine with great intellectual rigour, thoughts, perspectives, and views of great Australian philosophers, mechanics and laboratory assistants, who know nothing about deafness, other than what can be cleaned from horror stories handed down by people who themselves don’t know anything about deafness.

Reed the press release, included below, and then write, if you are so moved, and express your tears of gratitude to the Australian MP, who wasn’t even popular as the opposition Leader [Ha, Ha, Ha], here. But then again, he is a doctor isn’t he!

Still, there is light on the horizon, for Nelson that it is. There are some cyborgs out the ready to rain him with Hosannas from up high! But do write to him, here

———————————————————————

Media Release

19 August 2009

Nelson silences deaf people

Dr Brendan Nelson MP will tomorrow exclude the voice of deaf people from discussions about the needs of deaf babies and children.

Dr Nelson is hosting a parliamentary symposium on infant and early childhood deafness at Parliament House, Canberra, tomorrow, 20th August. According to a list sent out on 4th August, 24 people have been invited to the symposium. Of these 24 people, 12 are providers of audiology, cochlear implant and speech training programs which exclude the use of Auslan (Australian Sign Language); four are medical doctors, three of these specifically cochlear implant surgeons; and two are Cochlear Limited (the manufacturer of the cochlear implant) representatives. The remaining six are a provider of general support services for deaf children; a parent representative; an education expert; a representative of the general deafness field, including service providers; a deaf person who has recently published a book about his life experiences; and Health Minister Nicola Roxon’s advisor.

A total of 22 hearing people (including only one representative of parents of deaf children), and two deaf people will come together to decide what is best for deaf children. However, of the two deaf people, one is representing service providers as well as deaf people so is hardly likely to be in a position to put the interests of deaf children before the interests of service providers. This leaves only one deaf person who is, however, able to represent only his own personal views.

Concerned about the serious lack of representation for parents and deaf people, and the obvious bias towards cochlear implants as “the solution” to infant and childhood deafness, Deaf Australia wrote to Dr Nelson requesting a place at the symposium. Dr Nelson refused this request.

Recently the Australian Government released a report, Shut Out! which details the lived experience of people with disabilities and the shocking extent to which they are excluded from Australian society.

“Dr Nelson is clearly intent on continuing this appalling record of exclusion by deliberately refusing to allow at the symposium an advocate for the very people – deaf people themselves – who have most to offer the discussion and the most important stake in the decisions made,” said Deaf Australia President Kyle Miers.

“Until policy makers look outside the medical and allied professions and make an effort to understand and accept what bona fide representatives of deaf Australians and their families have to say, deaf children will continue to have access only to very limited services that do not address the needs of the whole person or ensure they receive the best possible language acquisition and education programs to fulfil their potential. This is the tragedy of the current situation in Australia and we see this symposium as unlikely to do anything to improve it,” Mr Miers said.

Recently Deaf Australia sent to the Australian Government a policy advice paper outlining the current situation for early intervention programs for deaf and hard of hearing children, and calling for the development of a national plan for the widespread provision of world’s best practice bilingual early intervention programs for deaf children, including those who have a cochlear implant.

Bilingual early intervention programs, provided that they also support the family to acquire Auslan, are the only programs that allow the child to acquire a native language (Auslan) naturally and to also acquire a spoken language. Every child should be enabled to develop to the extent possible their ability to speak. No child should be denied access to Auslan.

“Regardless of what happens at this symposium, Deaf Australia will continue to work with the Australian Government towards reforming our early intervention programs for deaf and hard of hearing children,” said Deaf Australia Executive Officer Karen Lloyd AM.

About Deaf Australia:

Deaf Australia, established in 1986, is the leading national peak body managed by Deaf people that represents, promotes, preserves, and informs the development of, the Australian Deaf community, its language and cultural heritage. It provides an information and advocacy service for Deaf people who are bilingual in English and Auslan (Australian Sign Language).

Deaf Australia is funded by the Australian Government through the Department of Families, Housing, Community Services and Indigenous Affairs.

Further information:

Deaf Australia Inc.: www.deafau.org.au

Contact:

Karen Lloyd

Executive Officer

Email: karen.Lloyd@deafau.org.au

Ph: 07 3357 8266

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Jun
20

While I’m on a roll, I’m gonna blog about something I never thought I would. The cochlear implant. Yes, that damn thing. I could describe it as an infestation, of biblical proportions, but I will try to be impartial and abstain from making any sarcastic comments, but irony, there will be aplenty. I’m Australian. How can you be Australian and not do irony?

For along time, I’ve harboured some serious ambivalence towards the implant, I still do, BUT I’ve always understood the choices that people were making, and WHY they were making those choices. I am a lot more savvy of the Deaf, deaf, hearing issues, surrounding the implant, than most bloggers profess to do. Sure, sometimes it’s not always apparent from what I write, but then again, many of the criticisms I have received, ignore many of the issues I raise. Perhaps, the menace of probing questions threatens the borders of their comfort zones? Or is it simply easier to accuse Deaf people of bias, critical and non accepting of diversity?

Meanwhile, the implant infestation continues unabated. It has invaded my family home.

Yes. SHOCK! HORROR!

Another B-Grade Science Fiction movie, "Let’s Do The Time Warp Again!"

Cue: Dr Frank’n’Furter, "How u do I, see you’ve got yerself, a cute little implant-tee!"

Sorry, couldn’t resist. Hard not to do the sark.

Anyway, my first encounter with the implant was when me mate Slakbarsted, not BARSTUD, but BASTARD, decided to succumb to the surgeon’s knife, and get himself the latest in hearing accessories. He did it twice, and is now bilateral [which makes me think, is there heterolateral and homolateral? Hmmm!? maybe heterolateral is someone who wears a hearing aid and an implant, and a homolateral is someone who wears an implant of the same model and make. Then it begs the question, what if a person only wears one, does that make them sololateral. The connotations of this word, are just too awful to contemplate!]

My second encounter, was when my Deaf brother’s partner, decided to get the implant. She wears a hearing aid too, thereby making her heterolateral. Even my Deaf Brother is contemplating the implant, labouring under some new age thesis, that the universe meant for us all to hear. That’s why we have ears.

My third, and recent encounter, was with a deafie who is also bi-lateral, and Deafie who grew up with an implant, and has rejected it when she came of age.

One thing that has become clear, is the implant is a more advanced hearing aid. Sure it does things a hearing aid doesn’t do, but it is still simply a hearing aid. The wearer still has to take it off, just like u would a hearing aid. I know Rachel., for one, was been huffing and puffing this very point, many times in her blog, but monotonous "Hosanna’s!" render’s any receptivity mute! Quite frankly, anyone who walks the Hosanna! Hallelujah! Route when discussing assistive listening devices, methods of integration, and how much more fulfilled they are because they are part of the mainstream, la, la, la, gets stonewalled.

Whereas my mate Slakbarsted, is alot more level headed, and so I am able to talk, discuss and ask all the questions I want.

When Slakbarsted told me of his decision to get the implant, I made it quite clear that I would not reject him. I haven’t and I won’t. He is my mate. But I did harbour a fear, that he would reject me, and the Deaf world, in favour of the hearing world. Slak, a revelation for you mate!

Of course, there is alot more to the story than this, which I’m not going to divulge, as it belongs to our personal sphere. If he wishes to elaborate why he decided to have the implant, he is welcome to speak for himself in the comments, or another blog post.

Happily, it turns out he has rejected neither. He has embraced both worlds. When I complimented him on his improved signing, I was actually expressing an appreciation of his embracing both world’s.

The first thing I hate about the implant, is how fucking awful it looks. I’m sure that one day, it will improve to the point, where it is virtual indistinguishable from a hearing aid. But until that day, you have to content yourselves with looking like freaks. That is one of my personal idiosyncrasies, my hatred of looking freaky [there’s alot more issues at play than just the aesthetics of the implant]. After all, I grew up with the box in the bag and a ear piece, before I progressed to the more normal looking behind the ear aids.

The second thing I hate about the implant, is the horror of subjecting myself to the surgeon’s knife. Then comes all the other attendant bullshit, which I can do without. I already have enough trouble adapting to new hearing aids, which take me a while to get used to. The new digital aids, require attending your friendly audiologist for any adjustments required. So, why would I put myself through all the other crap? Granted, everyone is different [see, I can acknowledge people making choices different to mine!]

The third thing I hate, and along standing one, is the kudos you get from hearing people, who loudly proclaim how lucky you are to be able to hear, and blah, blah, blah. In doing this, they actually make you feel more like a freak than you already are. The assumption that you have become more normal, and a better person than you were [already are], is patronising. For all th rhetoric about diversity, equality, and tolerance, there is the underlying assumption that normal is something they are and you’re not.

The fourth thing I hate, is how hearing people still make the assumption because you wear an assistive listening device, your deafness is obliterated, and that you can hear, even if you take them off. Hell, they don;t even think you take them off. I use to get that a lot. "Do you take them [hearing aids] off when you go to sleep, have a shower?" Ask my mate Slakbarsted about that one. When he told me about a particular incident, it reminded me, that the implant is still a mechanical device that can be switched off, or taken off.

It is actually a relief to be able to deal with the implant issue, and express my curiosity about it, without the attendent "Hosannas, it’s a miracle!" But then again, the golden rule is to ask a Deafie, never a hearing person, and make sure they are Aussie. You will be guaranteed some sense of level headedness. Then again, I could be wrong!

But, can the implant peacefully co-exist with Deaf people? Of course it can. Like any technology that has gone on before, it has its detractors, but if the truth be told, us Deafies are a lot more level headed than the rest of you rabble, give us credit for. Take out the bullshit, sorry, the "Hosannas and Hallelujahs", preach a little more level headedness, knock that integration chip off shoulder’s… and maybe, just maybe…

New Words For The Implant Lexiconography. Deafinitions welcome:

Sololateral

Heterolateral

Homolateral

Bilateral

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